So important. I dont start to get onto a sustainable recovery until i stopped working for 3 months. Need complete rest and then i could go back to work
Thank you for posting this story and I’m extremely glad you recovered. Long Covid is incredibly similar to ME/CFS, which unfortunately I’ve had for 8 years. I used to have a full time job, an active social life, hopes of buying a house and the option of a family but now I’m bedbound 23 hours a day and my husband is my carer. The NHS had no idea what to do with me so we are forced to pay for private healthcare (although no one knows what causes or cures ME so nothing has worked yet) and disability benefits are nigh on impossible to achieve for energy-limiting illnesses because the criteria don’t allow for them. I feel the prejudice and disinterest in these illnesses is collectively abusive and I don’t understand how millions of people globally can be treated in this way. I think you’d find the Health Rising blog, the OMF’s research, as well as writing by Ed Yong and David Tuller interesting. I hope you’re able to write more about these illnesses at some stage as LC, ME and other post-infectious illness sufferers could do with all the support we can get, and thank you for writing this post, it really does mean a lot.
Hi, could you share what all things worked for you to improve your condition? I don't live in the UK and don't have access to amazing doctors like the one you mentioned.
Thanks for writing about your experience - glad you're able to do so now.
Thanks so much John, it's really appreciated
So important. I dont start to get onto a sustainable recovery until i stopped working for 3 months. Need complete rest and then i could go back to work
Yes, this is the thing I had *no idea* about beforehand, and which I think most people don't realise. The only way to get better is complete rest.
Shocked and sad to hear this happened to you. Wishing you all the best for a better 2024
Thanks Sarah! Hope you've a great 2024 too!
Thank you for posting this story and I’m extremely glad you recovered. Long Covid is incredibly similar to ME/CFS, which unfortunately I’ve had for 8 years. I used to have a full time job, an active social life, hopes of buying a house and the option of a family but now I’m bedbound 23 hours a day and my husband is my carer. The NHS had no idea what to do with me so we are forced to pay for private healthcare (although no one knows what causes or cures ME so nothing has worked yet) and disability benefits are nigh on impossible to achieve for energy-limiting illnesses because the criteria don’t allow for them. I feel the prejudice and disinterest in these illnesses is collectively abusive and I don’t understand how millions of people globally can be treated in this way. I think you’d find the Health Rising blog, the OMF’s research, as well as writing by Ed Yong and David Tuller interesting. I hope you’re able to write more about these illnesses at some stage as LC, ME and other post-infectious illness sufferers could do with all the support we can get, and thank you for writing this post, it really does mean a lot.
Hi, could you share what all things worked for you to improve your condition? I don't live in the UK and don't have access to amazing doctors like the one you mentioned.
Thanks!
Hi Rahul, the amazing doctor just gave me the only advice that worked for me - which was rest and pacing. I know not everyone in a position to do that, with work and family commitments, but that was the only thing that actually helped me. There are a lot of good Long Covid resources, like this one https://www.shu.ac.uk/advanced-wellbeing-research-centre/projects/an-information-booklet-to-help-manage-chronic-fatigue-brought-on-by-covid-19. that I found very helpful for pacings
Awful to go through this. Glad you've recovered. This needs all the publicity it can get.
Thanks so much, Jon. I feel very fortunate to feel this well, and it definitely needs more publicity.